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Lupus Awareness Month Giving

Lupus Awareness Month Giving

Donate $50 and receive a purple jewelry set (US only).

Deadline, May 31st, 2021.

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Help Erase Lupus – WALK / RUN / RIDE

Help Erase Lupus – WALK / RUN / RIDE

Join me to raise funds and help the efforts of The Labalaba Foundation as we advocate for and support those suffering from lupus, affecting over
five million people worldwide.

  1. Sign up and pledge your support!
  2. Engage others to join you
  3. Wear purple / Walk Run or Ride
  4. Post photo on social media
  5. Tag The Labalaba Foundation
  6. Receive completion certificate

Register here:
https://forms.gle/gHhuxQag7Knn77Qe8

Donate today!
Naira: The Labalabafoundation
Union bank: 0091523728
Contact: Joy Green (813) 967-6417
labalabafoundation@gmail.com

USD:
https://paypal.me/pools/c/8z3
M24PQWL

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Doctors ON AIR – Topic ‘Lupus’

Doctors ON AIR – Topic ‘Lupus’

Our guest doctor is Dr. Ayesha Akinkugbe, Consultant Dermatologist, Lagos University Teaching Hospital (LUTH), 12th May, 2021.

Station
Classic Fm 97.3 Naija Fm 102.7

Time
8:00-8:30am
8:45-9:10am

Join us immediately after the show at 8:30am on ZOOM to ask your questions.

Listen Online
https://onlineradiobox.com/ng/classicfm/
https://www.classic97.net/listen-live

Link: bit.ly/DocOnAirQandA or go to www.doctorsonair.com.ng & click on the zoom link

Facebook: @doctorsonairng @doctorsonairng
Instagram: @doctorsonairng
Twitter: @doctorsonair_ng
Website: www.doctorsonair.com.ng

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Better Together: Connecting Lupus Healthcare with Education

Better Together: Connecting Lupus Healthcare with Education

It is the Labalaba Foundation virtual 4th annual world Lupos day health Symposium with the theme “Better together: Connecting healthcare with education.

Date: 10th May 2021
5pm WAT / 12pm EST

Zoom Webinar
ID: 823 9406 9257
Passcode: 833791

Facebook LIVE
facebook.com/thelabalaba

Host

  1. Chisa Nosamiefan

  2. Dr Ayesha Akinkugbe


Speakers

  1. Prof.Femi Adelowo, MBBS PWACP, FRCP NSR President.

  2. Mrs. Bridget Itsueli, Chairperson, Relate Africa.

  3. Dr. Samuel Ajayi, Consultant Physician/Nephrologist, UCH, Ibadan, Nigeria.

  4. Dr. Imina Nosamiefan, CEO, MedSapient.

  5. Dr. Uyi Ima-Edomwonyi, MBBS FMCP Consultant Rheumatologist LUTH.

  6. Dr. Brittany Weber M.D., PhD, Cardiologist, Brigham and Womens Hospital, Boston, Massachusetts.

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From Diagnosis to the Establishment of the Labalaba Foundation: My Journey from Surviving to Thriving

From Diagnosis to the Establishment of the Labalaba Foundation: My Journey from Surviving to Thriving

Background/Purpose: After having my youngest son in 1994, I developed discomfort in my fingers which I ignored. In 1997, I had pericarditis, and two years later, pleurisy. I was diagnosed with lupus at the Cleveland Hospital in Florida about 20 years ago, 4-5 years after my initial symptoms. My initial treatment was inconsistent, because I lived 4 hours away from the healthcare facility, and I did not have adequate health insurance. At this time, my symptoms were frequent fevers, weight loss, abdominal pain, and generalized myalgias. I took acetaminophen or naproxen and medicines like Zantac for the abdominal pain.

Treatment: I moved to Boston in 2008 and I started a consistent treatment regimen: prednisone, hydroxychloroquine, omeprazole, azathioprine, lisinopril, nifedipine. My disease also progressed. I experienced increased myalgias and developed blood clots and pulmonary hypertension. I continued to experience pericarditis and pleurisy. I was switched from azathioprine to mycophenolate mofetil, and warfarin and gabapentin were added. Abatacept was tried for my joints but I developed a rash. I was switched to belimumab. Finding the right cocktail of drugs required the masterful skill of my healthcare team to move me from barely surviving with lupus, and now, well on the way to thriving despite lupus.

Maintenance: After setbacks to my health between 2008-2015 (falls, increased pain, hospitalizations, difficulty coping, and having to stop work) I began to improve. I earned my master’s degree and started a consulting practice. I became active again with my Christian ministry and my stress level lessened, which seemed to be tied to reduced lupus activity. As a woman of Nigerian descent, it occurred to me that I had never met another Nigerian living with lupus. If lupus is prevalent in people of African descent in the US then it must be present in Africa and in Nigeria, the most populous African nation. I embarked on a fact-finding trip and then started The Labalaba Foundation for Lupus Awareness and Advocacy in Nigeria. I also began to participate in Boston-based research studies and became a member of the Patient Advisory Board of the largest lupus center in New England.

Quality of Life: My quality of life has drastically improved over the past three years. I am more active at home, I have socially re-engaged, I go shopping, and I travel. For many years I was unable to do this. Most amazing is that I am now a lupus advocate, educator, and champion. Since I began helping lupus patients I have not been hospitalized. Lupus is a complex disease and the complexity goes beyond the clinical symptomatic manifestations. Each lupus manifestation is influenced by a patient’s social circumstances and access to good medical care. The health and wellbeing of lupus patients may improve when definite steps are taken to address stress factors and other lifestyle triggers. Through my own journey and the creation of The Labalaba Foundation, I have taken charge of my health and hope to help others do the same.

Timeline of my journey with lupus, from my initial symptoms until the present time.

The Labalaba Foundation for Lupus Awareness and Advocacy programs and initiatives

Chisa Nosamiefan, patient and founder of The Labalaba Foundation, pictured with Labalaba Champions in Nigeria.

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Fall Winter BWH

Fall Winter BWH

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Experts urge early treatment on lupus

Experts urge early treatment on lupus

Lupus patients have been advised to visit rheumatologists early to gain valuable time for treatment.

The ailment is said to belong to a group called connective tissue or autoimmune diseases. When it strikes, the body is at war with itself. The protective white blood cells, which normally defend the body from germs, turn their weapons on the body.

Speaking at World Lupus Day, organised by Labalaba Foundation, at the Lagos University Teaching Hospital (LUTH), Femi Adelowo, a Professor of Medicine and Consultant Rheumatologist at the Lagos State University Teaching Hospital (LASUTH), said the cause of lupus is unknown, though there are many hypotheses.

He said: “One thing that is certain is that the disease results from a malfunction of the protective system. Some persons and families appear prone to these conditions.”

Co-founder of the foundation, Dr. Ayesha Akinkugbe, said lupus is a chronic, complex autoimmune disease that affects millions worldwide. More than 90 percent of people with lupus are women, diagnosed between the ages of 15 to 44.

She said women of African descent are especially at risk. In lupus, the immune system, which is designed to protect against infection, creates antibodies that attack the body’s own tissues and organs, the kidneys, brain, heart, lungs blood, skin, and joints.